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Hello

My name is Marie and I am the Founder of Empowered By AMC
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My Story

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I was born with Arthrogryposis Multiplex Congenita (AMC), a condition that affects my upper extremities and limits the range of motion in my arms and hands. Growing up, I quickly learned how to navigate a world that wasn’t built for someone like me. Simple tasks, like holding a pencil, buttoning a shirt, or carrying groceries, became daily challenges. I didn’t have the luxury of taking these things for granted, but instead, I found ways to adapt. It wasn’t always easy, but I was determined to live life on my terms.

As I got older, I realized that I wasn’t the only one facing these obstacles. I met so many others with AMC who, like me, had to find creative ways to do things most people never even thought about. Yet, despite our resourcefulness, we lacked the tools and support to make our lives easier. The adaptive tools we needed just didn’t exist or were too expensive or difficult to access. That’s when the idea for Empowered by AMC began to take shape.

 

Thus, Empowered by AMC was born. My nonprofit aims to provide individuals with AMC the adaptive tools and technologies they need to lead more independent, fulfilling lives. I wanted to create a space where people could find support, share ideas, and access customized tools that are designed to meet their unique needs.

For me, this mission is deeply personal. I want every person with AMC to feel empowered—to know that their challenges don’t define them and that there are tools, resources, and a community ready to support them. My journey with AMC has taught me that limitations don’t have to hold us back; instead, they can inspire us to innovate and find new ways to move forward.

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Empowered by AMC is my way of giving back to the community. It’s my chance to turn my experience into something that will help others, making sure no one ever has to face the obstacles of AMC alone. Together, we can build a world where every individual, regardless of their abilities, has the opportunity to live a full and empowered life.

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